MyJournE Privacy Policy
MyJournE Privacy Policy
This statement sets out how King’s College London and the University of Cambridge uses and protects your personal information including data from the use of the MyJournE platform. King’s College London have developed the MyJournE platform as a free web-survey and mobile application.
The protection and confidentiality of your data is very important to us. No personal data will be used for commercial purposes and personal data will only be disclosed if required by law or with your consent. None of the providers used by the MyJournE app sell data in any form to 3rd parties.
Information Collection and Use
The app uses the following third-party service that collects information used to improve our service: Firebase Analytics (Google). Only anonymised user data is transmitted to Firebase. Firebase’s privacy policy is available here: https://firebase.google.com/support/privacy
Data Collection
MyJournE collects survey data surrounding young people’s mental health, wellbeing and day-to-day experiences. This survey will last approximately 15 minutes, and will involve questions about your mental health, and how you have been feeling recently.
You will also be asked to monitor your mood and daily life events via the MyJournE app following completion of the survey. This will involve a number of one-word mood ratings and a daily life event diary. You will be able to tailor the notifications on the app and complete the ratings and diary entries at a time that suits you. Completing the mood monitoring will take no more than a few minutes per entry.
The app will collect data on your usage of the app as well as information about your mobile device such as operating system, version, device type, and system performance information.
Protection of Personal Data
Personal data is specifically protected by law. Personal data is any information that relates to an identified or identifiable individual. Only the MyJournE team will be able to access the personal details of study participants. All the study responses will be encrypted and stored separately from personal data. Participants will not be identifiable in any research outcomes (e.g. publications). All information collected will be handled with care and in compliance with the Data Protection Act (1998), the General Data Protection Regulation (2018), and the university’s Research Data Management Policy. MyJournE’s legal basis for processing personal data under GDPR is Function of a public task (by a public organisation).
How will this information be used?
MyJournE uses the data collected to personalise your use of the app and to authenticate you each time you open the app. We use data about app usage and performance to determine how people are using the MyJournE app and to continually improve the app. MyJournE stores content information and preferences locally and on the app server so that it can function both online and offline.
Data Protection Statement
The University of Cambridge is the sponsor and the data controller for this research, and King’s College London is the data processor. King’s College London will process your personal data for the purpose of the research outlined above. The legal basis for processing your personal data for research purposes under GDPR is a ‘task in the public interest’.
We will be using information from you in order to undertake this study. This means that we are responsible for looking after your information and using it properly.
Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
You can find out more about how the University of Cambridge uses your information https://www.medschl.cam.ac.uk/research/privacy-notice-how-we-use-your-research-data/“
Questions, comments and requests about your personal data can be sent to the King’s College London Data Protection Officer Mr Albert Chan info-compliance@kcl.ac.uk or if you wish to lodge a complaint with the Information Commissioner’s Office, please visit www.ico.org.uk.
Data Sharing
An anonymous dataset will be created from the survey response and mood monitoring data. King’s College London will securely transfer a copy of this to the University of Cambridge for the purpose of research. The dataset will not contain any personally identifiable information.
Participants may be asked for consent to be re-contacted about participation in future research projects at King’s College London. If they agree, their contact details may be retrieved and they may be re-contacted by the team or other researchers at King’s College London. This decision will not affect their participation in the MyJournE app.
Anonymised group level results will also be disseminated through scientific publication, conference/workshop presentations and user/carer groups.
Where do we store your data?
We store your data on Rosalind, a secure computing infrastructure hosted by King’s College London (https://rosalind.kcl.ac.uk/) which is delivered in partnership with the National Institute for Health Research (NIHR) Biomedical Research Centres at South London & Maudsley and Guy’s & St. Thomas’ NHS Foundation Trusts, and part-funded by capital equipment grants from the Maudsley Charity (award 980) and Guy’s & St. Thomas’ Charity (TR130505).
The fully anonymous dataset transferred to the University of Cambridge will be stored on the Research Electronic Data Capture (REDCap) Server. REDCap is a mature, secure server for building and managing research databases. It will only be accessed by members of the project research team using a validated log-in.
Your rights
As an individual whose personal data is processed by King’s College London you have the following rights:
- The right to be informed- which is what this privacy notice is for
- The right to access the data we hold about you
- The right to object to direct marketing- either use the opt-out button for future contact or contact us directly
- The right to erasure (in some circumstances)
- The right of data portability
- The right to have your data rectified if its inaccurate
- The right to have your data restricted or blocked from processing
To exercise any of these rights, please contact myjourne@kcl.ac.uk
Links to Other Sites
The MyJournE app contains links to other sites. These sites have been carefully selected to provide further mental health support for children and young people. If you click on a third-party link, you will be directed to that site. Note that these external sites are not operated by us. Therefore, we strongly advise you to review the Privacy Policy of these apps or websites. We have no control over and assume no responsibility for the content, privacy policies, or practices of any third-party sites or services.
Changes to Privacy Policy
We may update our Privacy Policy from time to time. You are advised to review this page periodically for any changes. These changes are effective immediately after they are posted on this page.
Contact
MyJournE is being conducted by researchers from King’s College London and this research project is funded by the UK Research and Innovation Fund.
If you have any questions regarding our Privacy Policy, please do not hesitate to contact us by email
The King’s College London Privacy Statement can be accessed here: https://www.kcl.ac.uk/terms/privacy.aspx
If you have any questions regarding our Privacy Policy, please do not hesitate to contact us by email myjourne@kcl.ac.uk
The KCL Privacy Statement can be accessed here:
https://www.kcl.ac.uk/terms/privacy.aspx